I am unsure how this piece is going to unfold since it has taken me seven months to sit down to write about this new phase of my life on this blog. Call it my "Journey Through Grief" era (to borrow a popular overused refrain). I have written a few posts on social media about my Mom and my travels on this road so far, and I will link to those throughout in case anybody wants to know how I felt at any particular moment along the way.
I can tell you that I have probably experienced all five stages of grief, with varying degrees of intensity. And something about this change in seasons has me more disconsolate, unfocused, and in a state of inertia. I consulted Dr. Google, and my self-diagnosis is either seasonal affective disorder, a nervous breakdown, or perimenopause. (Side note: I am not making the subject of my mental health into punchline, just pointing out how symptoms overlap.)
Everything has become a contradiction--I feel like I have been avoiding life while also desiring to become more adventurous and daring. That isn't entirely uncharacteristic of me in normal times, but it does seem to be more pronounced. I thought that with this election coming fast and furious, I would jump right in, and I have to the point where I have probably over-extended myself. Somehow, immersing myself into the work of saving democracy seems to be a more worthwhile endeavor than cleaning out my Mom's closets.
A year ago, it was my prayer that my Mom would outlive the need for hospice care by continuing to defy the odds. At her last hospitalization in August, we were told to expect her not to live more than a year, but the early indications were that she might actually thrive instead of decline. So I didn't rush to make any of the final plans that were recommended because I figured that even if we were living on borrowed time, living was the operative understanding. Hell, we're all living on borrowed time for that matter...
However, at the end of September, I made mental notes that each of the pending holidays could be our last...I just never verbalized any of it to anyone. And while she didn't appear to visibly decline, she never really improved to the point of being de-certified from needing hospice; and in hindsight, I wasn't really seeing things as they were. That was until Calamuary January (my term for how every effing thing that could go wrong that month absolutely did). It began when her long-term home care aide went out for a double hip replacement. That same weekend, the furnace in the house went out. I had been fighting with the insurance company over their spending caps and the shortages for months, and that was draining her finances. In response to yet another rate increase (thanks to a corporate consolidation), I had begun to negotiate ways to reduce care hours and creatively fill in gaps. And in the midst of all of that, the hospice nurse alerted me to some ominous physical changes.
Thus, by my Mom's birthday, I had gotten used to receiving a daily update on the list of new catastrophes. A pressure sore that wouldn't heal. Only one partial meal. Weight loss. So when the hospice nurse gave us the definitive unwelcome assessment mid-month and then having my Dad task me with sharing that news with my brothers, the outcome was pretty unescapable. I made some of the necessary preparations on the financial end and went through a few of the motions of mental preparation. I prayed. I visited as often as I could to tell her the things one says when they aren't sure what else there is to say.
On that final Sunday before, it was by pure chance that I had a ticket to see a play at Arena Stage. It was about Anna Julia Cooper, a historical icon who had been a principal at the turn of the century at the high school my Mom attended in the 1960s. And pretty much as soon as I found my seat, I knew that this was all some kind of divine message to prepare myself--that I just happened to be at one of her favorite theatre venues to see a play about her high school alma mater to learn about the life of a celebrated educator (just like my her) on the same day that the alumni had chosen to attend? As soon as the play ended, I rushed to the house to tell her about it. I don't remember if she was awake or know if she heard any of what I said or if she even knew I had been there.
That Tuesday morning, I planned to get a few hours of writing done before making my way over to the house. It was the routine to visit in between the end of the school day and the start of Kid's dance class. But an hour after I settled into my groove, the hospice nurse called, and let me just say how I wish the rest of the day was a total blur, but...
It wasn't. And honestly, I'm glad I remember every minute because I don't know how I would feel if I had to admit that on the very last day of my mother's life, I was operating in a daze or a fog. I'm glad that I remember every visitor (and there were a LOT), every person who prayed with us, and the fact that wherever three or more Black people are gathered, somebody is going to bring enough fried chicken to feed the multitude. When I tell you that I am grateful for every second of that day, even its agonizing and traumatic conclusion, I mean that.
I was there, right up until just before the end. After all of the visitors had left, we were transitioning from the afternoon caregiver to the overnight person. My Mom's breathing had become more labored, so she was given morphine. We discussed the plan for the following day, and I sat in the room with her for a few minutes just holding her hand. Then my brother came into the room, so I gave him my seat and went into the living room. It happened in the blink of an eye--my brother noticed that her breathing had stopped and after a few seconds of uncertainty about detecting a heartbeat, my Dad instructed me to call the ambulance. Within minutes, there were red lights, EMTs, and then this enormous suspension of reality between life, death, and procedures...
Life. She was gone. We all knew it, but in the same stubborn refusal that had been her way of barreling through and fighting back, we went through all of the motions of doing everything humanly possible not to accept reality. When the EMT arrived, I told them that she was end-stage Alzheimer's and was about to mention hospice when my Dad interrupted me. Do all you can, he told them, so I deferred.
Death. After 15 minutes, one of the EMTs told me that they would continue, but not to expect a change. By this point, my younger brother had returned with his daughter and the afternoon caregiver. I had exiled my Dad to the living room because it was too much to expect for him to watch. The day had been excruciating enough, so I stood there in the doorway--equal parts sentinel/supervisor/witness to the futility of trying to resuscitate her. Not because I had lost faith in miracles; on the contrary, it was my hope was that her ordeal would finally be over.
Procedures. The EMTs made the call and respectfully left. Unbeknownst to us, the police were on the scene to determine if any foul play had been involved, but the officer conducted his investigation with the understanding that there was nothing untoward. The hospice nurse called, and then informed us to expect another nurse to certify the post-mortem. As that nurse went about her examination, disposing of and reclaiming the medications, completing paperwork, I asked if giving my Mom morphine was the right call. She told me what I needed to hear, because in that moment that must have been routine for her, I was in a state of reassessing every single decision and choice that had been made that day. Not to assign blame or liability, but for reassurance. Once she left, my Dad, our neighbor, and I sat in the room to wait for the funeral home.
I remember wondering how we were supposed to fill the silence, with idle conversation or nervous housework? Depleted of energy, I nodded off in the chair at her bedside while my brothers waited in the living room. My Dad opted for idle conversation with our neighbor, who politely obliged. It was after 2am when the people from the funeral home finally arrived. I noticed that the gentleman who handled everything was dressed in a three-piece suit. I wondered if that's why it took them so long to arrive--was this dude getting dressed? How much time did he spend searching for a matching tie and pocket square? Why did that annoy me so much?
(Now that I've recollected and reflected on that particular detail, I realize my resentment was misdirected. I should have been mindful that this young man took the time to look presentable because he was coming to our home to remove our heart...so instead of looking like he rolled out of bed in pajamas or dirty sweats, he got dressed in a suit. I don't know how many of these transfers he's done from private homes in the middle of the night, and I can't imagine what it must be like to have that job to perform at the most vulnerable moment in a family's pain. So, my apologies and gratitude, sir.)
My first real meltdown took place a day or so later at the Marshall's. I shed a few tears the morning after, in the still quiet of being the only person awake in the house. But that felt like a normal reaction, especially as I stood in the doorway of the empty room where my Mom had been alive hours earlier. There was no need to get emotional during the meeting with the funeral home nor during the flurry of phone calls and visits. However that night (or maybe the next), one of the deacons at my church called to offer condolences, and her words loosened the faucet. Immediately after that call ended, I left to get some gas from the Costco, where there was a Marshall's nearby that was still open. I decided to pop inside to purchase the undergarments the funeral home had requested--just another errand that made sense to get done.
Except this was not just another errand, and I barely made it through the purchase before I was overcome by a torrent of ugly tears and hyper-ventilating. I don't know if I audibly screamed or if it was the echo of the thoughts in my head, but all I kept thinking was Dear Jesus why is this happening? Something told me to find my phone and call for help. Whether it was in response to a text she may have sent me, or because of the alphabetical arrangement of my contacts, I called one of my cousins. And though at the time, it felt like it was some random out of the blue choice, she was the exact person I needed to listen, calm my hurt, and provide me with assistance.
It would be weeks before I would cry again (though not at the funeral), and months before another uncontrollable gusher of grief hit. Typically, my emotional collapses coincide with the date--each successive month on the day of or in proximity to the date of my mother's transition. But it could accompany any sentimental memory trigger as well. In March, it was taking the girls to see The Wiz on Broadway for Easter. In April, it was walking up the hill on Howard's campus towards Crampton Auditorium...and then almost getting shot the following weekend by some chick in a parking lot over some bullshit. In May, it was being back on Spelman's campus. The June episode was over my frustration with ageism after that Presidential debate debacle. Mid-July hit me with the double whammy of losing my dance teacher and first professional boss in the same week, punctuated by Joe Biden's bombshell exit from the Presidential race. In August, I just decided to lean into the fact that it had been six months, but also a year since my Mom had entered hospice.
Which brings me up to date. And the confession that it hasn't always been depression or fury, but a complicated range of everything, everywhere, all at once. In April it was the irrationality of standing my ground against the unknown, and then having to admit the absurdity of my recklessness in endangering the lives of my family. In July, it was taking an unexpected detour into the cemetery to locate my Mom's grave (which I did, easily) compelled by the anxiety and dread that I don't feel safe to confide my emotions with anyone but her. Last week, it was this profound sense that I am a fraud, a self-declared "Busy" Black Woman in name only as opposed to everyone else who can seemingly rebound after the death of their loved ones by throwing themselves into some meaningful distraction.
So what the jobu tupaki is wrong with me?
Let's revisit the meltdown at the Marshall's, the memory of which I failed to suppress (in spite of my best efforts). I stood in front of a display of discounted panties and bras and had a panic attack as I attempted to figure out sizing, color, and if you can believe this even crossed my mind, COMFORT! My brain pondered the quandary of my Mom being buried in comfortable underwear, and that dear readers, is what caused me to nearly pass out in the dang parking lot before I found my way to the car. Then there was a similar experience at Target the following month. While lollygagging through the aisles, I was dismayed to learn that Target sold full Jockey brand slips superior in quality to whatever store brand camisole I found at JC Penny's. If only I had walked to the opposite end of our ghetto mall...but now it was too late. The hysteria of being haunted by my mother for the rest of my life over hasty shopping choices was real.
Before the funeral, I was irritated that the morticians chose the dark purple designer suit instead of one of the white dresses I indicated were my preferred options. Since I didn't expect for her to be wearing the suit, I didn't think to bring a shell (and my Mom always wore her suits with a shell). There was a scarf, but that was to accent one of the dresses. And instead of wearing the necklace I gave them, it was placed in her hand like a rosary even though she wasn't Catholic. I had to insist that they reapply her lipstick because there was NO WAY that I would have been content with her wearing pale pink gloss! In the end, my Mom was buried in her good suit, a scarf in place of a shell, some crappy slip I bought on sale from Pennys, and discounted underwear that may or may not have been the most comfortable option.
If you are questioning why any of this matters, it is because if I didn't obsess and overthink things, who else would? I inherited her tendency to notice e-v-e-r-y-thing, and as my mother's only daughter, attention to her final details became the last meaningful act of caregiving I could render.
It dawned on me that as I considered the length of time since my grandparents passed, I hope to remain alive for some unknown amount of time. One day, this could be my daughter. She could be mulling decisions about what to do with me since I'm not organized or morbid enough to leave instructions. I will have to trust her judgment knowing that this is the same child who likes to wear mixed matched shoes and clothes. Hopefully she doesn't get bogged down in the existential crisis of my ghost outfit the same way I got all twisted about my Mom's purple suit...
The comedian Kevin Fredericks posted this video about his grief at the loss of his brother, and I felt every word. Every one. Because death undoes. It takes reality and turns everything inside out. It makes you question the point of life. Why does it matter if I drink too much if I'm going to die anyway? Why do I need to make healthy life choices if some random chronic illness can come along and it won't matter that I exercised daily to prevent that very illness? What does it mean to be a woman of great intelligence and many talents, only to lose it all? Why accumulate all of this stuff, only to have it all given or thrown away by people who don't appreciate what it meant to me? What does it mean to be gone, forever? How long is forever?
Death takes an entire life and reduces it to a pile of fucking paperwork.
I am so over this. I am ready for this era to end. Mind you, I'm not wishing for a resurrection like The Monkey's Paw scenario; instead, I would like to wake up one day like Pamela Ewing to find my Mom in the kitchen. Or maybe in a different dream, I will wake up at my Grandmother W's house and she's in her kitchen or my Grandfather is driving his station wagon while my other Grandmother is pruning the bushes in her yard. The fact that I got used to not seeing them for all of these years makes it that much more painful to imagine what the next few years without my mother might feel like. I hope not as hard as watching dementia slowly chip away at her for the last 15 years.
This is supposed to be cathartic...and in a way, it is since I hadn't verbalized any of this until now. I don't know if I would have the courage to reveal these thoughts to a therapist and I don't dare breathe a word of this to anyone else (no worries, they won't read it). When asked, I've been evasive. I've deflected. I've focused my energy on everything else but my feelings. I go into the room where she died every day to open the blinds, and I replace the flowers on the dresser at regular intervals. I haven't donated any of her belongings yet, but I have worn some of her clothes (and I imagine her snarky oh so you can wear a size 8 now, in response). To the extent that I haven't gotten on with my life, I have re-positioned it around my grief. She isn't gone, she just isn't here. She's no longer rendered mute or physically incapacitated by that terrible disease. And so long as I remain open and receptive to the idea of her presence in this more ethereal existence, then we can have the kind of conversations and interactions that were impossible those last years of her life. Maybe that's how I keep on living.
No comments:
Post a Comment